The Michigan community, along with members of the rare disease advocacy network across the country, is mourning the loss of Grace Moseley, who passed away on Friday, June 19, 2026, following a long and courageous battle with health complications related to Superior Mesenteric Artery Syndrome (SMAS) and chronic intestinal failure.
Grace was widely known for her strength, faith, and unwavering determination throughout her illness. Despite facing significant medical challenges, she became a powerful voice within the rare disease community, using her journey to raise awareness and offer encouragement to others navigating complex health conditions.
According to tributes shared by family, friends, and advocacy groups, Grace endured the severe effects of SMAS, a rare gastrointestinal disorder that can lead to life-threatening nutritional complications. In the later stages of her illness, she relied on Total Parenteral Nutrition (TPN) for survival, as her body was no longer able to process nutrients through the digestive system.
Even during the most difficult moments of her battle, Grace remained committed to supporting others. She provided compassion, guidance, and hope to fellow patients and families, leaving a lasting impact on many lives. Her resilience and willingness to share her story helped bring greater awareness to rare conditions that often go overlooked.
Following the news of her passing, an outpouring of heartfelt tributes has emerged, honoring her courage, advocacy, and the meaningful connections she built along the way. Many remember her not only for her strength but also for her kindness and the inspiration she offered to those around her.
Grace is survived by her mother, Mary Moseley, along with extended family members, friends, and a wide network of supporters who continue to celebrate her life and legacy.
Details regarding funeral arrangements and memorial services are expected to be announced by the family at a later time. Grace Moseley’s memory will live on through the awareness she raised, the lives she touched, and the enduring example of courage she leaves behind.
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